WAHTN resources
CCI Handbook
Practical steps and tools for involving consumers in health and medical research.
Involving Consumers in Health and Medical Research
A practical handbook for organisations, researchers, consumers and funders.
The value of involving consumers in health and medical research cannot be underestimated. Consumer and community involvement (CCI) brings a unique perspective to all areas of research including planning, policy, funding, evaluation and reporting, as well as participation in the research project.
WAHTN has developed a CCI Handbook as part of an Australian Health Research Alliance national initiative funded by the Medical Research Future Fund, with additional support from our partners. It complements the rich suite of consumer involvement research, frameworks, policies and toolkits that have been developed by governments and organisations Australia-wide and internationally, and addresses a key barrier to embedding CCI: how to start.
“This Handbook is the essential resource for all those who are serious about involving consumers in health and medical research.”
Professor Gary Geelhoed MBBS, FRACP, FACEM, MD – Former Executive Director, WAHTN
A guide for everyone involved
This Handbook recognises four stakeholders in the CCI ecosystem: organisations, researchers, consumers and funders. The unique symbiotic relationship between these stakeholders is at the heart of successful consumer involvement.
The Handbook contains five phases for successfully embedding consumer involvement:
- Commitment
- Planning and Preparation
- Managing for Success
- Evaluating the Involvement
- Concluding the Involvement
The Steps: Clear steps for each phase for each stakeholder.
The Tools: Practical resources to support each step.
“When consumers are included as a valued part of the team, they provide a different way of looking at the research which benefits the researcher, the research organisation and, ultimately, the health consumer.”
George Kiossoglou – Consumer Representative, WEHI and Melbourne Academic Centre for Health
Download the handbook and quick guide
Published 2021. DOI: 10.26182/bhz4-gn61.
Download your stakeholder section
Watch the handbook introduction
Watch the introduction on YouTube →